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Tuesday, August 11, 2009

Please pray for Bella and spread the word!


Please be in prayer for this baby! She is a niece of a friend but they also live in our community.




Monday, August 10, 2009

He's my Son!


In the fall I was slapped in the face with reality called an IEP evaluation from Kristian's PT. For those that don't know what that is it's and an Individualized Educational Plan (and PT-- Physical Therapist) for anyone with special needs. I have been doing IEP's since Kristian was diagnosed at 15 months. It's nothing new and typically they say the same sorts of things. This past fall that all changed when Kristian started his 5th grade year and had a new PT .
I was working on the bus one day and was handed some papers. After securing the wheelchairs I sat down to look over what was handed to me. It was the evaluation from the PT regarding what she seen during her evaluation of him. As I started reading I felt like I was reading about a inanimate object with no name or no face. It was a bunch of terms, some of which I had never heard, some were completely false, and it was becoming more than I wanted to read so I stuffed it into my bag to finish later. I dreaded getting home and having to get this paper out and read it. I did not want to read what that "mean" lady, that I'd never met and neither had Kristian until that day, had to say about him. Upon getting home I began to read the paper again. Again, I was reading about Kristian and what seemed like all negative no good for nothing this and that's about MY SON! Tears started rolling down my face and for the next two hours my heart broke over what I read about my son.
I had to go onto my next job and was thankful that I work alone and could continue crying and asking God how this person, that does not know me or Kristian, could say things that were so hurtful. Does she know he has a mommy that loves him, does she know he has a mommy that does all she can to help him, does she know that he has a mommy that feels she takes on the whole world, all alone, to give him the world. Does she know he is my son? I was so hurt and so angry! I simply could not stop crying and thinking he is more than these words say he is, he is more than hyper/hypo tonic issues, he is more than spasticity, more than tone, he is more than dorsal flexsion and more than degree's of movement, he is more than non-ambulatory and more than AFO's, in what seemed to be 1000 words of what he is it never said one positive thing about him.
As Kristian's mom I will say undoubtedly that I am more, much much more of a person to have known him. He is more than most people will ever be and has taught me more than I could have ever imagined. He is a very special gift from God. He is love just as God is love. Kristian came into my life at just the perfect time, just as Jesus came into this world and died at just the perfect time. God's timing is always perfect. What a blessing to be Kristian's mom. (If you know Kristian I'm sure you are agreeing he is so amazing)
Today I called to get Kristian's genetic test results and was a little on guard and ready to let somone know HE'S MY SON if I needed to. =) The nurse said the results were like nothing she had seen before. I've heard those words from the beginning of this road with Kristian. (10 years ago) I should have known it was coming. The nurse was very nice and went onto tell me the results of the genetic testing came back as an unknown abnormality and it is suggested to have further testing with both parents to try to get a more conclusive result. She was apologetic for the vague results and us having to wait for 2 months to get them. It is my conclusion again that no matter what Kristian has, named or not, God knows and I trust him for our future.
Kristian is my son, he not his disability or his ability, he's not his wheelchair, or legs. He's my son and I love him. Some see him as broken and in need of this or that. I see him as perfect and here to show us how broken we are. Oh, if we only have eyes to see!
Thank you Kristian for being My Son!

Saturday, July 25, 2009

Getting away while away! =)

beautiful hotel.....today we checked into a hotel in Scottsdale called the Hotel Valley Ho....kinda an odd name I know but this place has great history and is so beautiful! Google it and you'll see for yourself. I'd recommend anyone coming this way to stay here. I totally love priceline and travelzoo deals. If you have never checked them out while traveling I'd also highly recommend those two sites. You can save hundreds of dollars. On with the show...Makayla Makayla Makayla...what more can I say! She is so wonderful, as a matter of fact she is with me in my room tonight while mommy and daddy have adult time. They will come get her when they come in for the evening and take her to their room so mommy can feed her during the night. I also have Lana but since she walks with me in the mornings she can hang with me! =) We went out to eat with my cousin Tammy and her family and had a great time! So here is the basic room at this hotel. The light above the tub is called a "mood" light...hmmmm...It's cool =)...the rest of the room is neat and the balcony is huge with two large sliding doors. It's a great get away for a few days! The weather has not only been hot but humid. So much for the dry heat in AZ. Humidity and hot is very gross!












































































































































































































































































































Little Miss Makayla!

Here is sad Little Makayla as she is starting to have an awerness of not knowing people. It was so sad! I caught up with two of my first cousins that I have not seen in years! (Lori was taking her turn and Makayla got sad. She did this when I got in the car upon arriving in AZ. I was like oh no.....) It was so good to see my cousins and their children! I had NEVER met Lori's 3 children and her twins are 12 so it has been way to long. Also, you will see Makayla talking to Aunt Brookie on the phone! She really gets into focusing on things and wanting them. She liked my earrings too! She's perfect and has grown so much in three months!




























Grammie is in Arizona!

Here is Little Miss Makayla Grammies pride and joy! She is better than perfect and loves to smile, laugh and play. I love holding her all the time! =)





















Sunday, July 19, 2009

more bunnies! =/

SO the bunnies have left my plants/bushes alone until this past week I noticed my silver mound on my front flower bed was looking very disheveled. I guessed a bunny was back but had not seen it yet. Today I seen him/her on the side yard and told him he don't live here and to go away. Moments later I walked outside ONLY to catch him jumping out of the silver mound. Ah ha ....caught him in the act! It was actually a her, come to find out the dumb bunny had baby bunnies. These dumb things....I now understand where the phrase "multiplying like rabbits" comes from. I cleaned out the nest and bunnies, 2 of them, and transplanted them to a flower bed in the empty lot beside my house. (Dumb I know but I just can't be mean) The mama watched from across the street so I told her to follow me and feed them. The whole while I'm thinking I'll want to shoot these dumb things in a few short months when they start eating my stuff! Oh such is life!! LOL










Saturday, July 18, 2009

July 16 strawberry came off!

On thurs. I was working and my phone rang, it was Ashlin. I was surprised because she should have been working so I answered and said aren't you working. She said she was called home by Dago. I knew right away it was Makayla's strawberry again! She said this time it was ripped completely off. They were very concerned because of the amount of bleeding when bumped however this time it seemed to bleed very little. We were relieved and are praying it will just go away and not give them the headache of trying to keep her from touching it anymore! She is SO wonderful and such a blessing for us! Thank you God for our baby girl! O=)